The Last Few Ellie Updates!

I've been behind since Sam and I got home from CO but here are the last few email updates on Ellie.  She had a successful heart surgery Friday morning and has been doing really well since!  Hopefully she is on the path to continued improvement!  These are in reverse order...


Saturday update:
Ellie had a restful day. not much going on with her today which is nice. they moved her quickly up to full feeds again after being off them yesterday due to surgery and she is doing great eating. they may try to take the vent off tomorrow but will see how her night goes. if the vent is taken out tomorrow she may be able to try a bottle again early next week. she was sucking on a pacifier very well yesterday and today so that is good news for future eating.

ellie woke up more today and was unhappy about the vent so tried a couple times to pull it out by herself. the nurses do not like that so they swaddle her up tightly to keep her hands away. it has been so nice this last week to have an ellie that we can move and hold and not worry about her breathing or heartrate. :) it will be awhile before we take those simple things for granted. it was a beautiful day in denver so we spent some quality time with the other three as well. we always feel good when we have a "normal" day with them around the house.
god is good and we are thankful for His peace and kindness to us. we are very grateful for His good gift of Ellie! have a great sunday.
love-
matt and abbie


Friday update:
Ellie's surgery went well today. The surgeon said everything looked good. She has been resting comfortably today and has opened her eyes but is definitely still sleepy from the drugs. Thanks for your prayers for surgery and we ask that you pray for her continued recovery.
Love-
Matt and Abbie


Thursday update:Matt and I just finished a nice time of holding our daughter. Ellie had a nice day of rest leading up to her surgery. She heads to the OR around 7:30 and will probably be there an hour and a half or so before coming back to the NICU.
Please pray for safety and healing. We could not ask for a better doctor and we are not anxious yet. :) God has been so gracious to us and we feel very blessed to have Ellie. We will update tomorrow and we are confident it will be good news.
Love-
Matt and Abbie


Wednesday Update:
Ellie has had five days of cooperating with us. Yea! Tomorrow she has an EEG to look how her seizures are acting. We hope they have only good news for us. Ellie's heart surgery is Friday morning at 7:30 so please be praying for safety and that all goes well.
This is short as I am typing it on Matt's blackberry because our computer is out of commission at the moment. Will let you all know how the EEG goes tomorrow.
Love-
Matt and Abbie


monday night update:
we had another uneventful day for ellie, three in a row! no seizures, very few desaturations, and overall looked good. she will have another echocardiagram tomorrow to see if the pda is still needing to be fixed and then as of now, she will go into surgery at 7:30 a.m. on friday to get it fixed. on thursday she is scheduled to have an eeg to make sure the meds are taking care of her seizures and so far they seem to be doing their job. a big week for her but hopefully all goes well.
kate and luke get done with preschool this week and that will be nice not to have to run around getting them to and from school. jenny and sam go home wednesday afternoon and then my brother is coming the next wednesday for a few days. we have been so blessed to have family out here to help us since ellie was born and also offers from friends to help out in any way we need. God has provided again and again for our many needs and we have so much to be thankful for.
love-
matt and abbie

 
More exciting things to come from me this week!  Stay tuned!!!!!  JR